| CO “100% Life” |
HIV, tuberculosis, hepatitis, all nosologies |
info@network.org.ua |
fb.com/100PercentLifeFightForLife |
| CO “Network 100% Life Rivne” |
HIV, hepatitis, tuberculosis, palliative care |
rivnelgv@gmail.com |
fb.com/rivnelgv |
| CO “Chernihiv Network” |
HIV, tuberculosis, hepatitis |
chernihivnetwork@gmail.com |
fb.com/lgvs.chernihiv |
| CF “STOPRAK” |
Cancer |
stopcancer.ua@gmail.com |
fb.com/STOPCANCER.Foundation |
| CF “Open Palms” (Cystic Fibrosis) |
Cystic fibrosis (orphan disease) |
mariya.aylen@open-palms.com |
fb.com/OpenPalms |
| Public organization “Ukrainian Association of Parents of Prematurely Born Children “Early Birds” |
Early born children |
ranniptashky.go@gmail.com |
fb.com/ranniptashky |
| NGO “Association “ESO Health of Ukraine” |
Platform on healthcare reform |
healthcare.assnua@gmail.com |
fb.com/healthcare.assnua |
| CF “Children with hemophilia” |
Hemophilia |
office@hemokids.org.ua |
fb.com/hemokids |
| NGO “Joy of Movement” (Juvenile rheumatoid arthritis) |
Juvenile rheumatoid arthritis (orphan disease) |
barlas@isp.kiev.ua |
fb.com/groups/radruh |
| NGO “Harmony of Movement” |
Juvenile rheumatoid arthritis (orphan disease) |
voloshchak_sts@meta.ua |
|
| Charitable Foundation “Sister Delilah”, NGO “Association of Rare Diseases of Ukraine” |
Pulmonary hypertension (orphan disease) |
fond.poryatunok@gmail.com |
fb.com/poryatunok |
| NGO “Drugs Control” |
Quality of medicines, prevention and early diagnosis (apps for all patients) |
info@likicontrol.com.ua |
fb.com/likicontrol |
| MFP “Drop of Blood” |
Myeloid leukemia, blood cancer |
kraplya_krovi@ukr.net |
fb.com/kraplyakrovi |
| Public organization “Wilson-Konovalov Disease” |
Wilson-Konovalov disease (orphan disease) |
organizationwilsons@gmail.com |
fb.com/groups/wilsondisease |
| NGO “Freedom of Movement” |
Joint replacement and complex fractures |
cvetochek.sveta@gmail.com |
|
| Public organization “Hemodialysis” |
Renal failure, transplantation |
Art_Best@ukr.net |
|
| Public organization “Dia Zen” |
Diabetes |
diadzen.office@gmail.com |
fb.com/diadzen |
| NGO “Sister Delilah” |
Pulmonary hypertension (orphan disease) |
fond.poryatunok@gmail.com |
fb.com/poryatunok |
| Volunteer organization to combat strokes “Just save life” |
Strokes, heart attacks |
info@justsavelife.org.ua |
fb.com/JustSaveLife |
| NGO “Epi-Education” |
Epilepsy and related diagnoses |
Akitore1@gmail.com |
epiprosvita.org |
| All-Ukrainian Charitable Foundation “Zaporuka” |
Pediatric oncology |
info@zaporuka.com.ua |
fb.com/Zaporuka |
| CF “Association of parents of children with autism” |
Autism, cerebral palsy |
nashideti.ua@gmail.com |
fb.com/profile.php?id=100064704937817 |
| Public organization “All-Ukrainian Association of Crystal People” |
Imperfect osteogenesis (orphan disease) |
ostimperfecta@gmail.com |
fb.com/OstImperfectaUA |
| Charitable Organization “Charitable Foundation “Eldar – With Hope in the Heart” |
Duchenne disease (orphan disease) |
karina128955@gmail |
fb.com/groups/258633994794760/ |
| 99 PROBLEMS |
Multiple sclerosis |
dopomoga99@gmail.com |
fb.com/dopomoga99probleMS |
| NGO “Brigantine” |
Oncology |
lora.rybchenko@gmail.com |
|
| Public organization “Athena. Women Against Cancer” |
Adult oncology |
athena.wac@ukr.net |
fb.com/athena.wac |
| NGO “Association of patients with inflammatory bowel disease “Full Life” |
Crohn’s disease |
info@gofulllife.com.ua |
fb.com/groups/go.full.life |
| Public organization “Association of patients with torsion dystonia” |
Torsional dystonia |
titova0523@gmail.com |
fb.com/ngo.aptd |
| Public organization Charitable Foundation “Special Opportunities” |
Parkinson’s disease |
cf.speposs@gmail.com |
fb.com/groups/cf.speposs/ |
| NGO “All-Ukrainian Association for Assistance to Patients with Cystic Fibrosis” |
Cystic fibrosis |
breathfree.ua@gmail.com |
fb.com/cysticfibrosisua |
| CO “Positive Women” |
HIV |
positivewomen.ukraine@gmail.com |
fb.com/PositiveWomenUkraine |
| Public organization “UCMS” Ukrainian Community of People with Multiple Sclerosis” |
Multiple sclerosis |
ucms.patients@gmail.com |
fb.com/UCMSorg |
| Public organization “Mental Health” |
Mental illnesses |
mentalhealth.kiev@gmail.com |
fb.com/ngomentalhealthkyiv |
| Public organization “Children with FAS” |
Fetal alcohol syndrome (orphan disease) |
fasukraine@gmail.com |
fb.com/FAS.Ukraine |
| Public organization “PNG Ukraine” |
Paroxysmal nocturnal hemoglobinuria (orphan disease) |
pnhukraine@gmail.com |
fb.com/pnhukraine |
| Public organization “Rare Immune Diseases” |
Primary immunodeficiencies |
120partia@i.ua |
fb.com/groups/1362469333782507 |
