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20/06/2012

People’s deputy Protects his Billions nearby Verkhovna Rada

Today, in the framework of ‘Deputy-altruist’ campaign, the activists gathered nearby the Verkhovna Rada have proposed to give away 1 billion hryvnias, or the third part of the sum annually assigned for sanatorium-and-spa treatment of state officials, to fatally diseased Ukrainians. A person worn business suit of an official tried to protect the billions of artificial hryvnias from fatally diseased patients by trundling them on a handcart in front of the Rada. «Stop hurling around empty promises about refusing from your deputy privileges», asserts Dmytro Sherembey, an HIV positive, the Head of the Ukrainian Community Advisory Board. «Today we have passed to deputies letters from our patients saying to publicly refuse from one third of medical expenses assigned for them and officially affix their signatures under such refusal. Then the Ministry of Finance will have chance to assign this money in next year budget for treatment of hepatitis, tuberculosis and AIDS and therefore stop these epidemics in Ukraine. Such altruistic act can reveal to the best way those of people’s elected representatives who cares about the destiny of people in need for the help and make a choice between the sanatorium vacation for officials and life of thousands of diseased Ukrainians». Based on the State Budget 2012, UAH 2.6 billions have been assigned for treatment and sanatorium-and-spa recreation of departments of the Verkhovna Rada, the Cabinet, the President’s Administration, the Ministry of Internal Affairs, and the Ministry of Defense. Approximately the same sum of money is received by the Ministry of Healthcare for the rest of other Ukrainians all over the general state medical establishments (hospitals, polyclinics, medical centers, and first-aid stations) — UAH 2.8 billions. These are the people’s deputies who are authorized to cut costs for medical services and sanatorium-and-spa treatment of the state machinery in our country. The walls of Verkhovna Rada have also been combated by the patients’ relatives and people who lost their natives due to lack of finance of medical establishments. «My son Oleksandr was 38 years old when he was diagnosed pneumonia. It’s probably been a cold caught at work», told us a mother of the deceased Oleksandr. It turned out further that he had tuberculosis. And that was it. It was his death sentence. He was sent to Mostysche, which is called a deadly place. Now I understand why. I sold one room in my apartment in order to save my poor son who was assigned by the government only UAH 3.5 per day. Doctor visited him once a week… But I failed to. I did not make in time. I was run out of funds. And now my son is no longer here. However, I have come here today to help other mothers, wives, children save their moms, husbands only because the government does not care, since officials neither see, nor hear this out of their palaces». «How many electors have you killed?», I put this question to every people’s deputy. «There are UAH 2.6 billion on the scales, which are spent today from the state budget for VIP medical services for the rulers and the life of over 4 million Ukrainians diseased with AIDS, tuberculosis and hepatitis who are still waiting for financing. Even a partial refusal from the privileges can save the life of fatally diseased Ukrainians, you decide!», Director of International HIV/AIDS Alliance in Ukraine Andriy Klepikov appeals to people’s deputies. «Not a penny has ever been spent from the budget over the entire history of Ukraine for treatment of hepatitis that have affected today 3.5 million Ukrainians. People who should have been provided free medical services by the government under the Constitution were left to die. I hope that owing to this campaign we will manage to open the eyes of state officials to the issue of financing in Ukraine and first of all for the treatment of such patients», states the Head of the All-Ukrainian Association «Stop Hepatitis» Olga Gavrilova. The activists handed over books for collection the signatures to the heads of parliamentary factions. Signatures of the deputies will certify their readiness to vote for the State Budget 2013, which would contain a billion of hryvnias for overcoming three epidemics. «It may be said without exaggeration that epidemics of HIV/AIDS, tuberculosis and viral hepatitis is a kind of a test for our society. This is a test for the government in terms of its ability to get mobilized together with public and international organizations for the suspension of epidemics. This is a very sensitive indicator, which builds up the country image. That is why taking these three epidemics under control at the modern stage of development of Ukraine is extremely important for the future of our nation», says Volodymyr Zhovtyak, the Head of the Coordination Council of the All-Ukrainian Charity Organization «All-Ukrainian Network of People Living with HIV». «UAH 1 billion for the liquidation of danger of three epidemics is not an issue for the state budget. Even if one makes a rough calculation of 2.8 billion distributed among the cluster of officials, for whom they are assigned, and the budget of the Ministry of Healthcare of 2.6 billion distributed among all diseased Ukrainians, the difference would be tremendous! It worth only cutting one third of the funds spent for medical servicing of the state machinery, which is not even perceived by the rulers, and the a life-saving billion would appear in the budget to stop the three epidemics, which may distress the nation», asserts Andriy Novak, the Head of the Economists’ Committee of Ukraine, Ph.D in economics. [dt_quote type=”blockquote” font_size=”normal” animation=”none” background=”plain”]Today in Ukraine: 9.5% of population is infected with HIV, tuberculosis and viral hepatitis. These are 4 million 184 thousand Ukrainians. 234,832 Ukrainians are HIV positive. Everyday HIV infection affects 58 Ukrainians. 449,201 Ukrainians are infected and have active tuberculosis. 12,000 annually die from this disease. Everyday tuberculosis affects 102 people in Ukraine. 3,500,000 Ukrainians are infected with hepatitis. Over the 20 years Ukraine has already lost 369,780 thousand citizens because of these epidemics. If families and relatives of diseased people are taken into consideration, the figure of those affected by epidemics will reach approximately 12,150,000 comprising 36% of the population of Ukraine.[/dt_quote] Campaign organizers: Ukrainian Community Advisory Board (UCAB), All-Ukrainian Charity Organization «All-Ukrainian Network of People Living with HIV», International Charity Organization «International HIV/AIDS Alliance in Ukraine», International Renaissance Foundation, All-Ukrainian Association «Stop Hepatitis»; expert support — Charity Organization «Development of Ukraine».
01/06/2012

Mandatory International Drug Manufacturing Standards Will be Implemented in Ukraine

Starting from 2015, there will be mandatory International Drug Manufacturing Standards approved by the World Health Organization introduced in Ukraine to protect patients from poor quality drug use. This agreement was reached by patients and the Ministry of Health during the round-table discussion on May 31, 2012.
12/04/2012

Patients Brought a Rake to the MOH

Patients with life-threatening diseases brought their appeal and a rake to the Ministry of Health Ukraine. By this act they demanded that the state drug procurement tenders be announced timely. Patients are resentful that the new Ministry leaders might trigger a backflash just like their predecessors who delayed tenders for drug procurements, and ultimately the ones who’d suffer would be patients…
28/02/2012

UCAB became one of the main advocates for patients’ rights for treatment in Ukraine during 2 years of its existence

During the last UCAB meeting on 29-31 October, 2012, main priorities for the next year were defined, and work undertaken over the last 2 years (since establishment) was summarized.
13/02/2012

Effective treatment for all patients in Ukraine — the main goal of UCAB by 2015

The main goal for the coming 3 years was approved at the General Assembly meeting of the Ukrainian Community Advisory Board (UCAB) on February, 10 — 11, 2012, which states: To ensure that all patients get effective treatment in Ukraine by uniting activists and changing state policy in the area of health care.
06/02/2012

COLLECTING SIGNATURES below the appeal to the PRESIDENT OF UKRAINE

To all Ukrainian people!
23/11/2011

Patients suspended unreliable drugs trial on 60 Ukrainian people

For more than a year already international and patient organizations tried to get precise information from Mili Healthcare pharmaceutical company about their new biosimilar product Peginterferon for HCV treatment. This drug was registered in 2010 and is now on its way for wide marketing in Ukraine. At the same time, no reliable data on quality, safety and effectiveness of this drug was submitted to any governmental bodies. «It’s just ridiculous, when a company tries to say that data about the drug is confidential and belongs to the laboratory, where this trial was made. Even patients cannot receive this data — those people who will undergo this experiment». — says Olha Havrylova, UCAB deputy Head, CEO of the NGO «Stop Hepatitis». Starting from November this year the company was going to start trial of the drug with unknown compounds and quality on Ukrainians, and for a couple of months was trying to aggressively recruit patients to it. «This piece of news was completely unexpected for us. There’s almost no HCV treatment in Ukraine while its price gains USD US$20,000 per year. And there are up to 3 mln. people living with HCV in Ukraine. Naturally, people will take any risk in order to cure this disease. Fortunately, patients intervened into situation, and the company declared that the trial will not be launched before our patient organization doesn’t have reliable data about the drug and approve trial protocol, which is going to be held in Ukraine.» said Dmytro Sherembey, the Head of UCAB, and the Director of Communication, Policy & Advocacy Department of the All-Ukrainian Network of PLWH. Due to the presence of key governmental bodies at the meeting — the State expert Center and the Central Ethical Committee of the MoH of Ukraine — the patients managed to persuade the pharmaceutical company to register their trial in the state bodies according to the legislation of Ukraine. [dt_quote type=”blockquote” font_size=”normal” animation=”none” background=”plain”] Additional information: HCV epidemic represents one of the crucial health care problems in Ukraine and in the world due to its high prevalence and high chances of life-threatening states evolvement (inflammations, swelling of the liver). At the same time, possibilities of Ukrainian patients to get high quality treatment are seriously limited. The reason for this is unreasonably low governmental commitment in solving treatment issues, extremely high prices for drugs produced by originator companies on the one hand and low quality of bio-similar drugs imported to Ukraine on the other hand. [/dt_quote]Download a[rel~="mtli_filesize52250kB"]:after {content:" (522.50 kB)"}
15/11/2011

Meeting with ViiV/GSK

During the meeting of UCAB members and state bodies’ representatives for the first time an agreement on the inclusion of patients into the group under the Ministry of Health of Ukraine (MoH) responsible for the list of drugs for procurement was reached.
27/09/2011

Meeting with MSD

WHO prequalification should be an obligatory condition for the state procurements of generic medications
05/07/2011

Meeting with ABBOTT

The first meeting of Ukrainian Community Advisory Board (UCAB) and the representatives of pharmaceutical company took place on April, 19-21. The first company, who met the community, was Abbott Laboratories Ltd.